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http://www.westhartfordnews.com/arti...mode=fullstory
CDC says mitochondrial disorder does exist:
http://www.cdc.gov/ncbddd/autism/mitochondrial-faq.html
So do other medical institutions, in contrast to BCH's opinion:
http://my.clevelandclinic.org/disord..._diseases.aspx
This is very concerning situation.
ETA:
A pattern of ?parent-ectomies" targetting PANDAS and mitochondrial disorder cases:
http://www.bostonglobe.com/metro/201...xZI/story.html
Published: Sunday, December 15, 2013
By Kathleen Schassler
@ImKat17 on Twitter
WEST HARTFORD?As snow fell on their West Hartford home on Tuesday morning, the Pelletier family arrived in Boston with the sunrise. They?ve made the trip weekly to visit their youngest, Justina Pelletier, 15, who?s been held at Boston Children?s Hospital for the past 10 months.
Justina, who was diagnosed and treated by doctors at Tufts Medical Center, in Boston, for a rare genetic disease called mitochondrial disorder, arrived at BCH last February to be treated for the flu. She has been held captive ever since.
Since Justina?s regular doctor wasn?t available, a new team of doctors treating Justina at BCH reportedly said that mitochondrial disorder does not exist. They instead diagnosed Justina with somatoform disorder, a mental illness characterized by pain and gastrointestinal symptoms that have no identifiable physical cause.
...
By Kathleen Schassler
@ImKat17 on Twitter
WEST HARTFORD?As snow fell on their West Hartford home on Tuesday morning, the Pelletier family arrived in Boston with the sunrise. They?ve made the trip weekly to visit their youngest, Justina Pelletier, 15, who?s been held at Boston Children?s Hospital for the past 10 months.
Justina, who was diagnosed and treated by doctors at Tufts Medical Center, in Boston, for a rare genetic disease called mitochondrial disorder, arrived at BCH last February to be treated for the flu. She has been held captive ever since.
Since Justina?s regular doctor wasn?t available, a new team of doctors treating Justina at BCH reportedly said that mitochondrial disorder does not exist. They instead diagnosed Justina with somatoform disorder, a mental illness characterized by pain and gastrointestinal symptoms that have no identifiable physical cause.
...
http://www.cdc.gov/ncbddd/autism/mitochondrial-faq.html
So do other medical institutions, in contrast to BCH's opinion:
http://my.clevelandclinic.org/disord..._diseases.aspx
This is very concerning situation.
ETA:
A pattern of ?parent-ectomies" targetting PANDAS and mitochondrial disorder cases:
http://www.bostonglobe.com/metro/201...xZI/story.html
These cases are rare, but not as rare as one might think. In just the last 18 months, Children?s ? which given its reputation attracts many of the toughest cases from across the Northeast ? has been involved in at least five cases where a disputed medical diagnosis led to parents either losing custody or being threatened with that extreme measure. Similar custody fights have occurred on occasion at other pediatric hospitals around the country.
...
Still, allegations of suspected medical child abuse become far murkier when the parents? assessment of the child is backed by reputable physicians at different hospitals. Some child-protection doctors, whose field has recently been elevated to a board-certified specialty, are beginning to draw criticism ? even from some unlikely quarters.
Dr. Eli Newberger, a pediatrician who founded the child protection team at Children?s in 1970 and ran it for three decades, cautions that ?doctors in this new specialty have enormous and really unchecked power.?
...
?She was visibly upset, stating she refused to go,? a clinician in the psychiatry unit wrote in the hospital record on April 9. ?She stated she wanted to speak to her lawyer.?
Justina, who was desperate to return to school even if she was unable to walk, repeatedly told the Children?s team that she did not want to go into this ward. But, the record noted, she was informed that ?she was not able to make this choice.?
Choices about her future were now in the hands of the Commonwealth of Massachusetts.
...
Still, allegations of suspected medical child abuse become far murkier when the parents? assessment of the child is backed by reputable physicians at different hospitals. Some child-protection doctors, whose field has recently been elevated to a board-certified specialty, are beginning to draw criticism ? even from some unlikely quarters.
Dr. Eli Newberger, a pediatrician who founded the child protection team at Children?s in 1970 and ran it for three decades, cautions that ?doctors in this new specialty have enormous and really unchecked power.?
...
?She was visibly upset, stating she refused to go,? a clinician in the psychiatry unit wrote in the hospital record on April 9. ?She stated she wanted to speak to her lawyer.?
Justina, who was desperate to return to school even if she was unable to walk, repeatedly told the Children?s team that she did not want to go into this ward. But, the record noted, she was informed that ?she was not able to make this choice.?
Choices about her future were now in the hands of the Commonwealth of Massachusetts.
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