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Woman with unidentified hemorrhagic illness flown to Jakarta from West Sumatra

Ronan Kelly

Ronan Kelly

Retired 2020
West Sumatra Woman Taken to Jakarta for Rare 'Bleeding' Disease
Jakarta Globe | June 05, 2011

Dora Indrayanti Trimurni's head will bleed if she ?thinks too hard.?

The rare blood disease plaguing the Bung Hatta University law student also causes her mouth, nose and ears to bleed, in addition to, the pores on her head.

The 25-year-old, Padang native is currently being treated at the city's M. Djamil Hospital, but will soon be transferred to Cipto Mangunkusumo Hospital in Jakarta due to the hospital's limited resources, according to Gustafianof, M. Djamil Hospital spokesman.

?We have the experts, but we don't have the adequate medical equipment to give her the treatment she needs,? Gustafianof told Detik.com. ?We are trying our best to fly her to Jakarta on Wednesday at the latest.?

...

http://www.thejakartaglobe.com/news...n-to-jakarta-for-rare-bleeding-disease/445100
 
Re: Indonesia: West Sumatra Woman Taken to Jakarta for Rare 'Bleeding' Disease

Re: Indonesia: West Sumatra Woman Taken to Jakarta for Rare 'Bleeding' Disease

Friday, 03/06/2011 (June 3) 12:51 pm

Dora, Patient RS M. Sweat BloodDjamil Still Treated Intensive

Jakarta - Doctors Hospital M. Djamil Padang intensive care patients still sweating blood, Dora Indriyanti Tri Pure (25). Beautiful girl with the crew cut that was recorded as the sixth semester students of Faculty of Law, University of Bung Hatta Padang is still fitted with the infusion and continue to be given anti-bleeding drug.

Since hospitalized two weeks ago, Dora in generally good condition although still weak and many lay in Installation-patient Hospital Inpatient Medicine Section M. Djamil Padang. Meanwhile, the team doctor who treats Dora continues to deepen the symptoms of the disease is comparatively rare to examine a blood sample to a laboratory in Jakarta.

This was conveyed by the Head of Public Relations and Public Complaints Installation M Djamil hospital in Padang, Gustafianof, told AFP via telephone on Friday (03/06/2011). According to him, his party has so far not been able to ascertain what the illness actually Dora because they still continue to be explored.

"Based on the results of CT scans and blood tests conducted by a team of our doctors found no abnormalities in Dora. We had also sent a blood sample to Jakarta and is expected to receive the results next Monday," said Gustafianof.

Furthermore Gustafianof said it also seeks to provide food intake other than intravenous fluids to Dora who remain posted since Dora admitted two weeks ago. This was done to maintain the condition of her body to remain strong.

"There are no dietary restrictions. We continue to strive to remain strong for his physical condition to undergo further treatment process," said Gustifianof.

As reported, Dora Indriyanti Tri Pure is a hospital patient. M. Djamil Padang is a rare disease that is blood will seep from the pores of his head when thinking too hard. In some cases, blood was also out through the nose and ears.

Besides being a rare disease, Dora received extensive attention from the public because of his incredible story. The young woman who has been orphaned, the note had been a motorcycle taxi drivers, construction laborers, security guards, and cleaning service to make a living and education. Dora is also responsible for the survival and education of two sisters.

http://us.detiknews.com/read/2011/0...ngat-darah-rs-m-djamil-masih-dirawat-intensif
 
Re: Indonesia: West Sumatra Woman Taken to Jakarta for Rare 'Bleeding' Disease

Re: Indonesia: West Sumatra Woman Taken to Jakarta for Rare 'Bleeding' Disease

and an earlier story from June 1, 2011 . . .

Wednesday, 06/01/2011 18:04 pm

Blood Sweat disease strikes Dora

Padang -
Blood Sweat called hematidrosis (Sweat Blood), which in certain conditions can be caused by disease other or have high blood pressure. This condition also experienced Indrayanti Trimurni Dora (25), a student living in the Valley.

Blood Sweat is a disease rare. This condition is one of the side effects of extreme response fight or flight that occurs when a person experiences stress anxiety or fear that very deep.

Anxiety and fear are so strong can cause tiny blood vessels that supply the sweat glands become tighter and smaller, so that when blood vessels dilate bleeding will occur.

In addition there is also another theory that says that the extreme anxiety or fear experienced by a person causes the release of a chemical that can be
break the capillaries in the sweat glands. As a result there is a small amount of bleeding so that the sweat that comes out along with blood.

Effects that occur in the body associated with this hematidrosis include weakness, mild to moderate dehydration and high anxiety makes a person sweat to sweat blood.

It happened at Dora who experience this rare medical problem in which fresh blood out of the pores of the scalp and ears. When dijenguk M Djamil Hospital in Padang, the young girl was still smiling despite a week of intensive care, because disease suffered unique. Fresh blood is often out of the pores of the head and ears when he thinks too much.

"So come on let him rest first. As seen, the current condition is far better than when treated in ICU 2 X 24 hours yesterday," said Head of Public Relations M Djamil hospital in Padang, Gustavianof, told AFP during a visit to the infirmary of disease in RS M Djamil, on Wednesday (01/06/2011).

Dora, VI semester students of the Faculty of Law, University of Bung Hatta (UBH) Padang, since last few days was the opinion widespread attention. In addition to suffering from disease which was considered strange, beautiful woman with cropped hair gain sympathy because it also had a remarkable life story.

According Gustavianof, Dora has actually experienced this condition since the last two years. Disease is rare and has not been established until now.

The blood will be poured like sweat from the pores of the head when she was thinking too hard. In fact, not rare blood out of the ear, nose, and mouth.

"Early diagnosis showed patients experienced a situation where easy bleeding. These conditions, due to abnormalities of blood vessels, the content of platelets in the blood, and blood clotting. Patients with bleeding in the mouth, ears, and nose is common. But bleeding that occurs in the pore head-pore as experienced countless rare Dora, "he explained.

According Gustavianof, it has made ​​some efforts to test to know for certain diseases suffered what Dora. The team also had to deal with doctors who perform computer radiography scanner (CT scan) in the patient's head but found no abnormalities.

"Monday or Tuesday next we will take blood samples directly to Jakarta for questioning in one laboratory. We will take patients to the airport by ambulance and took blood samples so the plane would depart. It had to be done due to necessary examination of fresh blood taken four hours before entering the lab, "explained Gustavianof.

http://us.health.detik.com/read/201...enyakit-keringat-darah-menerpa-dora?881104755
 
Woman with unidentified hemorrhagic illness flown to Jakarta from West Sumatra

Hemorrhagic dengue? Leptospirosis? H5N1? Possibly something non-infectious?

http://www.antaranews.com/en/news/72477/rare-disease-patient-flown-to-jakarta-from-west-sumatra

Rare disease patient flown to Jakarta from West Sumatra
Wed, June 8 2011 21:37 | 157 Views

Padang, West Sumatra (ANTARA News) - Dora Indriyanti Tri Murni (25), who had been suffering from a rare disease in the last two weeks and under treatment at the Djamil general hospital here, has been flown to Jakarta by Lion Air at 9 am.

Fresh blood had been oozing from the skin pores of her head and ears, which was still a mystery to the Padang hospital, which eventually decided to refer the woman to the main general hospital in Jakarta, spokesman for the Padang hospital Gustafian said here on Wednesday.

The patient was flown to Jakarta in the company of Dr Irza Wahyudi who had been handling her in Padang, and her relatives.

Dora, a senior student of Bung Hatta University here, was seen off at the Padang airport by West Sumatra Governor Muslim Kasim, Padang Mayor Fauzi Bahar, and several high officials of the Padang city administration.

The patient had arrived in Jakarta at 10.30 am, and was brought straight to the Cipto Mangunkusomo Hospital in Jakarta.
(Uu.H-NG/A014)
 
Re: Woman with unidentified hemorrhagic illness flown to Jakarta from West Sumatra

That is a major research hospital. For instance, they perform transplants there. It adjoins the University of Indonesia.
 
Re: Woman with unidentified hemorrhagic illness flown to Jakarta from West Sumatra

Thanks RoRo, I missed that.

If the woman has been experiencing those symptoms for two years, it is likely a genetic condition or environmental exposure, and not the result of an infectious disease. Also of note is that fever is not reported as a symptom.
 
Re: Woman with unidentified hemorrhagic illness flown to Jakarta from West Sumatra

Hat-tip IOH.

More details about the patient, including moving the onset of illness all the way back to 2003.

http://padangekspres.co.id/?news=berita&id=6590Asked to Treat Serious Kemkes Dora - Irman Membezuk, still Diagnosis Disease Doctor

Padang Express ? Monday, 20/06/2011 13:00 pm ? zulfasli ? 16 clicks


Jakarta, PADEK -Chairman of the Regional Representatives Council (DPD) RI Irman Gusman asked sooth the Ministry of Health (Kemkes) and a team of doctors treating patients with blood sweat, Dora Indrianti Tri Pure, 25.Insistence, said Irman, to give a moral boost for Kemkes and team doctors to be more glorious achievement in the future.

"Council's decision to respond positively Cipto Mangunkusumo Hospital (RSCM), which has formed a team of doctors consisting of five specialists to handle the patient's blood sweat, Dora Indrianti Tri Pure," said Irman Gusman, in Jakarta, Sunday (19 / 6).Earlier on Saturday (18 / 6), Irman Gusman specifically membezuk Indrianti Tri Pure Dora, to the treatment room 8th floor of Block A, RSCM, road Salemba Raya, Jakarta.

Because the team has been formed, further Irman, DPD is hoping the team would be able to work in earnest until he could reveal scientifically what really matters of Dora suffered."The bitter experience of this nation associated with the bird flu virus is taken abroad do not recur, because the incident was very detrimental to the health of this country," explained the senator from West Sumatra.

At that time, foreigners carry the virus out of the country until they find a cure formulations.But in practice, Indonesia suggested as a party who has no role in the process.

In its dialogue with Tri Pure Indrianti Dora, Irman Gusman told to remain steadfast and tawakal accept this ordeal."The best thing for Dora, is patient and tawakal face this ordeal, because God will only give a trial for his people according to the capacity and kapabiltasnya respectively," said Irman.Moreover, in the presence of a number of doctors and nurses, Chairman of the DPD also provides financial assistance to ease the burden for Dora.

Meanwhile, in order to find the cause of blood sweat that comes out of the pores of the head of Dora, a team of doctors will perform the initial diagnosis of the illness Dora.These initial efforts should be a doctor because of abnormalities of platelets in the body of Dora.

Director of the RSCM, Prof. Akmal Taher during a press conference last week said the country's Dora still being treated in Room 805, Building A RSCM.While a specialist haematologist Dr Supri Efendi who was also one of the doctors, adding there are many possible causes bleeding from the pores of the head of Dora.

"At first, Dora menstruate good in 2003 but after that the patient suffered from bleeding in the skin of hair, but we still do not understand why it could happen.But for the first diagnosis is the presence of clotting abnormalities in platelet function, "said Shupri.

The big question to be answered related to Dora, why only the heads are out of his blood."For that examination if there is trauma or damage to the blood vessels in the head so the blood out of there," said Shupri."For treatment, we must know the first cause.some of today we are still working on platelet function, "he added.

Supri suspect there are bleeding disorders that occur in Dora.This patient, said Supri, already bleeding from the pores of his head since 2003.Conditions are normally six to eight months later.

But it appeared again since two years ago.He said the results of the examination, the doctors have done four different tests of platelet function.He admitted today the RSCM not yet have the tools and are being sought to be brought.

Revealed Supri, bleeding experienced by Dora not constantly, but only periodically.The possibility that Dora can be experienced as a derivative of their parents, can also occur at the stage of pregnancy, parents, and the impact on the adult."But the problem can not get blood out suspected when," he added.

Previous Minister Endang Rahayu Sedyaningsih, see Dora after arriving at the RSCM Jakarta (8 / 6).Minister of Health stated, all maintenance costs during care at the RSCM Dora will be financed by the government through the Community Health Insurance (Jamkesmas).Dora or familiarly called Adit is a patient referral from Dr M Djamil, Padang, West Sumatra.

Law student University of Bung Hatta, Padang and enter arrived from RSCM since Wednesday (8 / 6) afternoon.Disease 'rare' Dora suck a lot of parties. (*)

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