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US- The truth about Lyme Disease: Undercounted and underfunded

Shiloh

Editor, Senior Moderator
Source: http://www.connecticutplus.com/cplu...-Undercounted-and-underfunded1093010930.shtml

The truth about Lyme Disease: Undercounted and underfunded
By Time for Lyme

Lyme disease is on the rise, yet public funding for this epidemic lags behind funding for other illnesses, many of which impact a much smaller proportion of the population. "Lyme disease cases increased 77% over a recent two-year span," says Dr. Harriet Kotsoris, neurologist and medical advisor for Time for Lyme, a research, education, and advocacy group based in Greenwich, CT. "It is the most commonly reported vector-borne illness in the United States and has been documented in 49 states."

Despite being the fastest-growing tick-borne illness in the States, Lyme disease receives less than 10% of government funding for vector-borne diseases. According to research compiled by the California Lyme Disease Association, federal funding for West Nile virus has been 18 times greater than the funding for Lyme disease.

"This inequality in funding is disheartening," says Dr. Kotsoris. "Morbidity associated with chronic Lyme disease is significant. Patients suffer a degree of physical deterioration equal to that of patients with congestive heart failure."

The number of cases of Lyme disease is undercounted. From 1992 to 2006, the number of reported cases more than doubled. Cases spiked 77% from 2006 to 2008; in 2009, the Centers for Disease Control and Prevention confirmed 38,468 probable cases of Lyme disease, an increase of approximately 12% from the prior year.

The CDC admits to the possibility of underreporting by a factor of 10. Thus, there could be more than 200,000 new Lyme cases a year in the United States. Many physicians believe that the real numbers may be even higher. A study published in Journal of Community Health reported on a Georgia Southern University study which showed that for every symptomatic patient, one asymptomatic patient exists, and other research illustrated that the rate of clinical diagnosis was 40 times the surveillance rate...
 
Re: US- The truth about Lyme Disease: Undercounted and underfunded

http://www.underourskin.com/news/lyme-discoverer-willy-burgdorfer-breaks-silence-heated-controversy
February 28, 2007, the UNDER OUR SKIN film crew interviewed Willy Burgdorfer, Ph.D., M.D., and Scientist Emeritus at the National Institutes of Health (NIH), for three hours at his home in Hamilton, Montana. Dr. Burgdorfer is the discoverer and namesake of the spirochete (a type of bacterium) that causes Lyme disease, called Borrelia burgdorferi. He has received numerous awards, including the Robert Koch Gold Medal, the IDSA Bristol Award, the Schaudinn-Hoffman Plaque, and the Walter Reed Medal. He is a coeditor of the book, ?Aspects of Lyme Borreliosis,? and has published over 220 research papers. Just as we began filming, there was a pounding on the door, and we found ourselves facing someone who turned out to be a top researcher at the nearby Rocky Mountain Laboratories, a biolevel-4 NIH research facility. Standing on the porch, our uninvited guest said, ?I?ve been told that I need to supervise this interview. This comes from the highest levels. There are things that Willy can?t talk about.? We were stunned. After all, Dr. Burgdorfer had been retired from the lab since 1986. We were there to talk to a private citizen, about the history of a very public discovery that had put him on the short list for a Nobel Prize. Earlier that year, the NIH had refused our requests to interview any of their Lyme researchers. What was going on? Why would the NIH want to censor information about the fastest growing bug-borne disease in the United States?

[snip]
Soon after we turned-off the camera and began packing up our gear, Dr. Burgdorfer told us with a wry smile, ?I didn?t tell you everything.?....
:(

Columbia University recently established the first center for studying chronic lyme disease.

http://www.columbia-lyme.org/research/keyarticles.html
Persistence of Borrelia burgdorferi in mice after antibiotic therapy
[snip]
We do not know the extent to which these findings can be translated to the human situation. Nevertheless, the activation of infectious spirochetes after anti-TNF therapy in mice should alert clinicians to the possibility that anti-cytokine therapy may result in a similarly increased risk of activating latent infection among patients with a history of treated Lyme disease. ...
 
Re: US- The truth about Lyme Disease: Undercounted and underfunded

http://www.newburyportnews.com/local/x1690512200/Very-lonely-disease
March 9, 2012
'Very lonely disease'
Woman with Lyme disease and her mother start support group


By Angeljean Chiaramida Staff writer
[snip]
An insidious disease

According to the Centers for Disease Control and Prevention, typical symptoms at the onset of the illness include flu-like ailments such as fever, headache and fatigue.

Left untreated, as was DuVal's, the infection can spread to joints, the heart and the nervous system, which caused DuVal's dizziness, memory difficulties, swollen joints, muscle aches and near-debilitating fatigue...
 
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