tetano
Editor, Senior Moderator
Five years after a rare and cruel illness struck down their daughter, a couple watch helplessly as the same condition hits their son, 3.
Jared and Sarah Chisnall have watched their eldest daughter, Lucia, deteriorate from a healthy 2-year-old to an almost blind, brain-damaged 7-year-old because of a rare genetic disorder.
The couple from Franklin soldiered through each heartbreaking illness that claimed another piece of their daughter's brain function, but now the unthinkable has happened.
Their only son Tobin, a 3-year-old twin, has succumbed to the same immune regulation dysfunction - acute necrotising encephalopathy of childhood (ANEC)
...
http://www.nzherald.co.nz/nz/news/article.cfm?c_id=1&objectid=11305033&ref=rss
Jared and Sarah Chisnall have watched their eldest daughter, Lucia, deteriorate from a healthy 2-year-old to an almost blind, brain-damaged 7-year-old because of a rare genetic disorder.
The couple from Franklin soldiered through each heartbreaking illness that claimed another piece of their daughter's brain function, but now the unthinkable has happened.
Their only son Tobin, a 3-year-old twin, has succumbed to the same immune regulation dysfunction - acute necrotising encephalopathy of childhood (ANEC)
...
http://www.nzherald.co.nz/nz/news/article.cfm?c_id=1&objectid=11305033&ref=rss