MN, USA: Eight year old dies of undiagnosed CNS lesions

[Emily]

http://plymouth-mn.patch.com/articles/letter-life-after-amara-weidinger-s-death

LETTER: Life After Amara Weidinger's Death

One girl's mysterious death has become much more and reached beyond death for many.
5:55 am
[snip]
Amara, a second grader at Heritage Christian Academy in Maple Grove, lived with a medical mystery illness that caused lesions to grow on her spine and brain. The medical experts in Minnesota and around the world are still figuring out this strange disease...

She spent 6 months in intensive care with no diagnosis before dying. I don't know if this case is related this was posted by a WA state mother (Photo of infant included):

http://www.medhelp.org/posts/Pediatrics/Baby-Has-Lesions-on-Skin--Brain--Spleen--Spine-Cannot-Find-Diagnosis/show/1743316

May 28, 2012
3 Comments
Ellie has multiple lesions on her skin, brain, spleen, and spine. The lesions on her brain and spine have started bleeding. After months of tests Doctors still have not been able to find a proper diagnosis. She is currently on medication to "buy time" while Doctors try to find an alternate solution to radiation, but time is running out...

Yes there have been reviews done by Boston Children's and Seattle Children's but no conclusions yet, just that it's not any of the possible diseases they originally thought it could be.