tetano
Editor, Senior Moderator
JMIR Res Protoc
. 2026 Apr 22:15:e91976.
doi: 10.2196/91976.
Care Pathways and Patient Experiences Among Patients With Post COVID-19 Condition: Study Protocol for a Mixed-Methods Study in Germany
Daniela Gesell[SUP] 1 2 [/SUP], Paula Lienesch[SUP] 2 [/SUP], Yanyan Shi[SUP] 2 3 [/SUP], Ralf Strobl[SUP] 2 4 [/SUP], Martin Tauscher[SUP] 5 [/SUP], Roman Gerlach[SUP] 5 [/SUP], Eva Grill[SUP] 2 4 [/SUP], Daniela Koller[SUP] 1 2 [/SUP]
Affiliations
Background: The COVID-19 pandemic has a lasting impact on health care utilization, as both the acute infection and post COVID condition (PCC) can lead to increased demand for medical services due to ongoing symptoms.
Objective: The aim of this study is to systematically examine health care utilization among individuals after acute SARS-CoV-2 infection in Bavaria, Germany, with a particular focus on PCC. The study combines claims data analysis with qualitative interviews to improve the understanding of objective care pathways and patients' subjective experiences within the health care system.
Methods: The research project 'SOLongCOVID' employs a mixed-methods design consisting of two subprojects: (1) a retrospective cohort study using claims data from the Bavarian Association of Statutory Health Insurance Physicians (KVB) to analyze care pathways through state sequence analysis, (2) a qualitative study based on semistructured interviews and focus groups with patients with PCC concerning their subjective care experiences. A synthesis process involving a focus group discussion will combine the information from the two subprojects, providing a comprehensive understanding of the care processes of patients with PCC.
Results: The study was funded by the German Federal Joint Committee Innovation Fund in October 2024. Statutory health insurance claims data cover the period from 2019 to 2022, and qualitative interview data collection is planned from May 2025 to August 2026. As of manuscript submission, study preparation and ethics approvals have been completed, and 14 participants have been recruited for the qualitative interviews. Study findings are anticipated to be published from July 2026 to August 2027.
Conclusions: The results are expected to enhance the understanding of existing barriers and challenges and to support evidence-based recommendations for improving care pathways for patients with specific care needs.
Keywords: PCC; ambulatory care; healthcare pathways; long COVID; mixed-methods; patient experiences; post COVID condition.
. 2026 Apr 22:15:e91976.
doi: 10.2196/91976.
Care Pathways and Patient Experiences Among Patients With Post COVID-19 Condition: Study Protocol for a Mixed-Methods Study in Germany
Daniela Gesell[SUP] 1 2 [/SUP], Paula Lienesch[SUP] 2 [/SUP], Yanyan Shi[SUP] 2 3 [/SUP], Ralf Strobl[SUP] 2 4 [/SUP], Martin Tauscher[SUP] 5 [/SUP], Roman Gerlach[SUP] 5 [/SUP], Eva Grill[SUP] 2 4 [/SUP], Daniela Koller[SUP] 1 2 [/SUP]
Affiliations
- PMID: 42018978
- DOI: 10.2196/91976
Background: The COVID-19 pandemic has a lasting impact on health care utilization, as both the acute infection and post COVID condition (PCC) can lead to increased demand for medical services due to ongoing symptoms.
Objective: The aim of this study is to systematically examine health care utilization among individuals after acute SARS-CoV-2 infection in Bavaria, Germany, with a particular focus on PCC. The study combines claims data analysis with qualitative interviews to improve the understanding of objective care pathways and patients' subjective experiences within the health care system.
Methods: The research project 'SOLongCOVID' employs a mixed-methods design consisting of two subprojects: (1) a retrospective cohort study using claims data from the Bavarian Association of Statutory Health Insurance Physicians (KVB) to analyze care pathways through state sequence analysis, (2) a qualitative study based on semistructured interviews and focus groups with patients with PCC concerning their subjective care experiences. A synthesis process involving a focus group discussion will combine the information from the two subprojects, providing a comprehensive understanding of the care processes of patients with PCC.
Results: The study was funded by the German Federal Joint Committee Innovation Fund in October 2024. Statutory health insurance claims data cover the period from 2019 to 2022, and qualitative interview data collection is planned from May 2025 to August 2026. As of manuscript submission, study preparation and ethics approvals have been completed, and 14 participants have been recruited for the qualitative interviews. Study findings are anticipated to be published from July 2026 to August 2027.
Conclusions: The results are expected to enhance the understanding of existing barriers and challenges and to support evidence-based recommendations for improving care pathways for patients with specific care needs.
Keywords: PCC; ambulatory care; healthcare pathways; long COVID; mixed-methods; patient experiences; post COVID condition.