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Pakistan-Mysterious disease strikes children

Re: Pakistan-Mysterious disease strikes children

I trust this article more than any of the previous ones. This seems like a pretty accurate evaluation of what is going on there. I might put a " - genetic disorders and malnutrition" onto the end of the thread title.

http://www.dawn.com/wps/wcm/connect...ren-suffering-from-genetic-disorder-429-hs-03

KARACHI: The Sindh health minister with a team of senior paediatricians paid a visit to a poverty-ridden locality of the metropolis, Rehri Goth, on Wednesday to get first-hand knowledge about the reports that children of the area had become victim of some mysterious ailment.

As a result of the visit, four children of Rehri Goth, aged between four and 10 years, were rushed to the Civil Hospital Karachi, where doctors would evaluate them clinically for treatment.

The head of the paediatric ward-II in the CHK, Prof Iqbal Memon, told Dawn that one of the children was admitted to the intensive-care unit while others were admitted for evaluation and treatment for severe weaknesses, including nutritional weaknesses, anaemia and slow growth.

There had been reports about Rehri Goth, a neglected population of about 30,000 people in Ibrahim Hyderi, that it was haunted by some mysterious diseases.

Health Minister Dr Sagheer Ahmed and his team of doctors visited the locality to know whether it was an outbreak of some disease or something else that made the area children sick.

The minister and his team met and interviewed several persons, who had gathered along with their sick children at a house in Khalifa Para, Rerhi Goth.

Later, he told newsmen that there was nothing mysterious behind the children’s ailment.

He said the children were the victim of genetic disorder, rickets, muscular dystrophy, thalassaemia and other diseases due to ignorance of their parents and the overall environmental and unhygienic conditions.

He said he had interviewed parents and saw the children along with a team of senior doctors, who were of the view that the disorders could have been averted provided the families had the opportunities for any improved education, health and financial resources.

‘However, it is never too late and the government will help these families of fishermen,’ he added.

The health minister said that a camp would be set up again at Rehri Goth on Thursday to ascertain the exact number of children affected by genetic disorders or inherited diseases.

Some independent social and health workers told Dawn that though the disease problems in children existed for last many years, it could be highlighted only in recent months.

‘We need free ambulance service and free physiotherapy for our affected children,’ said some parents. ‘The government should ensure the establishment of fully-fledged health-care centres with doctors and equipped with machines and medicines in our vicinity and other coastal areas as well,’ they added.

Health Secretary Syed Hashim Raza Zaidi, Dr Iqbal Memon, Dr Zulfiqar Bhutta, Dr Abdul Majid, Dr A. D. Sajnani, Dr Saeed Qureshi, Prof Juned Ashraf accompanied the health minister.

The medical superintendent of the CHK, Dr Qureshi, said that a team of doctors had already visited the area and asked the NGOs working in the area to ask the families concerned to bring their children to the CHK for clinical investigations, but no positive development could be noticed.

Dr Iqbal Memon said the affected children were suffering from mental retardation, nutritional weakness, muscular dystrophy, vitamin D resisting rickets, genetic brain dystrophy and infections. ‘I am afraid that a couple of children also suffer from bone dysphasia,’ he said.

Dr Bhutta of the Aga Khan University said that such diseases were also common in other villages, which were facing pathetic health and education infrastructure, across the province and the country. This could be attributed largely to inter-family marriages and there is a need to educate parents on the subject, he added.

Meanwhile, the health minister said in a press release that the treatment and physiotherapy would be provided to all the sick children of Rehri Goth
 
Re: Pakistan-Mysterious disease strikes children

http://www.thenews.com.pk/daily_detail.asp?id=215199

Rehri Goth child paralysis



Camp established to assess, treat disease

Friday, December 25, 2009
By our correspondent

Karachi

After a wave of mysterious disorders affecting the children of Rehri Goth, Sindh Health Minister Dr Sagheer Ahmed has ordered the establishment of a camp in the area to assess and treat the ailing children.

A team of doctors from the Civil Hospital Karachi visited Ibrahim Hyderi and met the children of Jam Punnoh to evaluate their condition.

Reports regarding a mysterious disease plaguing the residents of Rehri Goth, had been circulating in the media with no particular cause coming forth. Dr Ahmed visited the area with a team of doctors on Wednesday to find out the real cause of the disease. After interviewing several people in the area the minister later told media persons that the ailment is not mysterious. Rather it is a ?genetic disorder? including other diseases like, thalassemia and muscular dystrophy. Dr Ahmed said that the disease is a result of unhygienic conditions in the area and ignorance of the parents.

The team of doctors, who were present with the minister, was of the view that due to lack of financial resources, education and health facilities the disease had spread so much in the area but said that it?s still not too late as the government will help the families of those infected.
 
Re: Pakistan-Mysterious disease strikes children

There is other text in this article, but it deals with H1N1 in Karachi, which is irrelevant to this thread.

http://www.nation.com.pk/pakistan-n...achi/25-Dec-2009/Walk-for-swine-flu-awareness

Medical camp at Rehri Goth
On the directives of Sindh Minister for Health, Dr. Sagheer Ahmed, a medical camp has been established in Rehri Goth to assess and treat the ailing children of the area.
An announcement here on Thursday said that a team of doctors from Civil Hospital Karachi visited Ibrahim Hyderi area and met the children of Jam Punnoh to examine their condition.
Meanwhile, three children of a resident, Hussain have been shifted to Civil Hospital Karachi where they are being treated at the Paediatrics Ward.
It was pointed out that the Provincial Health Minister Dr. Sagheer Ahmed had visited Rehri Goth and Ibrahim Hyderi on Wednesday and ordered for shifting of children of Hussain to Civil Hospital Karachi and evaluation of children of another resident Essa to the Aga Khan Hospital.
 
Re: Pakistan-Mysterious disease strikes children

http://www.thenews.com.pk/daily_detail.asp?id=215534

214 patients examined at Rehri Goth

Karachi

As many as 214 patients were examined by the doctors at the medical camps set up at Rehri Goth and Ibrahim Hyderi areas. In an official statement issued on Saturday, it was said that the medical camps were set up on the directives of Sindh Health Minister, Dr Sagheer Ahmed. In all, 77 children were examined by the doctors during the past two days at the medical camp set up at Rehri Goth while 132 youngsters were examined at the camp at Ibrahim Hyderi. Meanwhile, six camps have been established outside the Sindh government hospitals to foster awareness about swine flu. The camps are located outside the Civil Hospital Karachi, Skin Hospital Saddar, Sindh Government Hospital Korangi, Sindh Government Hospital Saudabad, Sindh Government Hospital Liaquatabad and Sindh Government Qatar Hospital Orangi Town.
 
Re: Pakistan-Mysterious disease strikes children

Wow. After going silent for a week, the source that started this thread spits out this. Certainly could be arsenic poisoning, but almost every other source had blamed this on genetic defects. Obviously, I can't fully trust this source.

http://www.dailytimes.com.pk/default.asp?page=2010\01\01\story_1-1-2010_pg12_10

Health sector largely ignored

KARACHI: The reputation of provincial health department officials was exposed during 2009 that saw several disease outbreaks in the city. The state-run hospitals remained out of medicines during the year and the health department completely failed to manage the situation and provide relief. From the beginning of the year drinking water contamination, acute water shortage remained at the top of the list of water related issues. Arsenic contamination in underground water caused around 200 persons, mostly children, to suffer from lower limb paralysis in Rehri Goth and Ibrahim Hyderi in the coastal belt of the city. Additionally outbreaks of diarrhoea were also reported in the biggest slum area of Karachi. Furthermore, the city has been in a grip of fear from Dengue Haemorrhagic Fever (DHF) and Swine Flu, as the both outbreaks remained in the headlines throughout the year. amar guriro
 
Re: Pakistan-Mysterious disease strikes children

And ironically, the other main source in the area also published a year-end review, in which they blame this on malnutrition and genetic disease.

I only posted the appropriate part of this article - much of the rest of this article deals with political issues.

http://www.thenews.com.pk/print1.asp?id=216039

The news that the mystery of the illness that had crippled at least 200 children in the fishing villages of Rehri Goth, on the outskirts of Karachi, has been 'solved' has been presented by the Sindh government as 'good news'. But is this really the case?

Experts say malnutrition, genetic disease and lack of awareness had contributed to the distorted bones and abnormal growths afflicting the children. They say in other villages, many more such children can be found. The images of the children laid out on reed mats is evidence of the extent of the neglect of people and the inability of the state to bring about any improvement in their lives over six decades after the country was created.
 
Re: Pakistan-Mysterious disease strikes children

http://www.thenews.com.pk/daily_detail.asp?id=216403

12 more months of broken promises



Saturday, January 02, 2010
By Jan Khaskheli

Karachi

The residents of Karachi?s 129-km coastline begin another year with the same lingering problems of water shortage, inadequate sanitation, and the lack of health and education facilities. The year that ended on Thursday brought nothing substantial for the dwellers of city?s suburban areas except announcements, diseases, increasing pollution and broken promises.

The performance of the health department left much to be desired throughout the year and the indifferent attitude of officials meant that the coastal communities were left at the mercy of all sorts of health problems ? most troublingly manifested in Rehri Goth where 200 children suffered from a crippling disease/disorder that the health officials were clueless about.

Nazim Union Council Gabopat, Keamari Town, Mubarak Sanghu, told The News that a compiled report of the past eight years shows that successive governments had done nothing in terms of development of basic health centers (BHC) and schools ? qualitatively and quantitatively.

Most of the BHCs and schools in the area are not functional. There are four dispensaries meant for the residents of Lal Bakhr, Hussaini Goth, Mubarak Village and Deh Allah Bano and all of them have been closed for years. Though the Mubarak Village dispensary was established about 12 years ago, the provincial health department is yet to appoint a doctor there. This means that in cases of emergency, the residents of these areas have to take patients to hospitals in the Mauripur area, some 30 kilometres away.

In many of these areas, people also revealed that, because healthcare facilities are located far away from the villages, a considerable number of expecting mothers die before reaching hospitals. There is a dire lack of genuine initiatives in these areas. For example, in the case of the Rehri Goth disease/disorder, teams of different government and non-government health practitioners, including one led by the provincial health minister, visited the locality, got blood samples and conducted necessary tests. Yet nothing was done to fight and eliminate the problem.

The area activists told The News that, on the directives of the minister, four affected children of one family were admitted in Civil Hospital Karachi, but the children?s parents had to bear the cost of medicines, which created deep disappointment in the community. While Sanghu did give some credit to Pakistan People?s Party MNA Qadir Patel for launching an electricity project for 35 coastal villages near Hawks Bay, he said that there has been no follow up and the KESC is yet to start the project despite the fact that the entire payment has been made in this regard.

Similarly, he said, a Rs20-million sanitation project for Benazir Quarters in the same neighbourhood has been under process for a long time now, which has raised questions regarding the commitment of the government.

Meanwhile the activists of, Bhit Island and Mubarak Village in Keamari town complained to The News that though legislators and ministers had paid several visits to these localities and made many promises, nothing materialized on the ground.

In this regard, Gadap Town Municipal Officer Gul Hassan Kalmati said that there had been no initiatives regarding water supply, sanitation, road construction and rehabilitation of rural health centers (RHCs) from the provincial or city governments in the town limits during the year 2009. The TMO added that the City District Government Karachi completed two 50-bed hospital projects, one each for Gadap and Memon Goth in 2009, but neither is functional yet.
 
Re: Pakistan-Mysterious disease strikes children

The rest of this article is not suitable for FT.

http://www.thenews.com.pk/print1.asp?id=218026

PFF women?s wing leader, Tahira Ali, said that women in the coastal areas do not have access to potable water, and most of their time is wasted by fetching water for domestic needs. In this situation, neither can they keep their homes clean nor can they educate their children, she said.

Ali also linked the mysterious diseases in Rehri Mayan to poverty and restlessness of the mothers, who usually wander in filthy streets and go door to door in search of potable water.

Ruqqaya Usman, a woman from the community, said that the women are the real custodians of some 1,260 small and big lakes and the 350-km-long coastal area of Sindh.
 
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