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Nature Med. Nodding syndrome leaves baffled scientists shaking their heads

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  • Nature Med. Nodding syndrome leaves baffled scientists shaking their heads

    [Source: Nature Medicine, full free text: (LINK). Extract, edited.]
    Nodding syndrome leaves baffled scientists shaking their heads


    Sarah C P Williams

    Journal name: Nature Medicine
    Volume: 18, Page: 334
    Year published: (2012)
    DOI: doi:10.1038/nm0312-334
    Published online 06 March 2012



    Louise Jilek-Aall was a young Norwegian physician working in the Mahenge mountains of Tanzania in the 1960s, when she noticed that an unusual number of people there suffered from a debilitating convulsive disorder preceded by a peculiar symptom: in childhood, their heads would bob back and forth for minutes at a time. The head nodding usually stopped before the general seizures set in. But when the epilepsy started, the children were typically weaker and of lesser intelligence than other children of the same age, often with neurological symptoms not seen in people with general epilepsy. The disease was ?unexplainable to me,? recalls Jilek-Aall, now a professor emerita at the University of British Columbia in Vancouver.

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