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Canada - New Brunswick monitoring more than 40 cases of unknown neurological disease - similarities to Creutzfeldt-Jakob disease - 2015+

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  • #31
    bump this

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    • #32
      A woman with a mysterious brain disease developed memory loss, a stutter, and tremors. She goes to bed every night in fear. (msn.com)

      The case history of one of the patients, a 75 year old woman with onset in January 2020 and a negative CJD test.

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      • #33
        Cluster of neurological syndrome of unknown cause - Canada - 2013-2020

        Opening date: 10 May 2021 Latest update: 12 May 2021

        Epidemiological summary

        A cluster of neurological syndrome of unknown cause has been reported in New Brunswick, Canada. As of 6 May 2021, 48 cases have been reported, including six deaths. In some cases, more information is needed to determine if the cause of death was a result of this syndrome. Most cases have dates of symptom onset between 2018-2020, except for one case who experienced symptoms in 2013, the gender ratio is 1:1 and age ranges between 18 and 85 years.

        Most cases live in the south-eastern and north-eastern regions of New Brunswick, around the Acadian Peninsula and Moncton areas. However, there is no evidence so far suggesting that residents of these regions are at higher risk. Some symptoms include memory problems, muscle spasms, balance issues, difficulty walking or falls, blurred vision or vision hallucinations, unexplained and significant weight loss, behaviour changes, and pain in the upper or lower limbs. A case definition was finalised on 5 March 2021 and sent to New Brunswick physicians to encourage case finding.

        The Public Health Agency of Canada's Creutzfeldt-Jakob Disease Surveillance System (CJDSS) has actively investigated the possibility of human prion disease but to date all tests have been negative for known forms of human prion disease.

        There is an ongoing investigation from the authorities.

        Source: Canadian local health authorities

        ECDC assessment
        More information is needed to better assess this event. EU/EEA citizens living in or travelling to New Brunswick, Canada, are advised to contact their healthcare provider if they experience symptoms described in this cluster to determine whether they may be related to this cluster investigation.

        https://www.ecdc.europa.eu/sites/def...5-may-2021.pdf
        ?Addressing chronic disease is an issue of human rights ? that must be our call to arms"
        Richard Horton, Editor-in-Chief The Lancet

        ~~~~ Twitter:@GertvanderHoek ~~~ GertvanderHoek@gmail.com ~~~

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        • #34
          Source: https://www.cbc.ca/news/canada/new-b...aire-1.6043062

          Public Health begins surveying members of mystery brain disease cluster
          Luc LeBlanc hopes the questionnaire provides answers, but worries the clock is ticking
          Karissa Donkin, Maeve McFadden · CBC News · Posted: May 28, 2021 5:00 AM AT | Last Updated: 6 hours ago

          New Brunswick Public Health has started contacting people who have been diagnosed with a mystery brain disease to answer a questionnaire that they hope will yield vital clues about what's causing the illness.

          That comes nearly four months after Public Health said it first drafted a case definition for the neurological illness, which has so far taken six lives and has sickened at least 48 people in total, primarily around the Acadian Peninsula and Moncton areas.

          For patients and their families dealing with a disease where symptoms only get worse with time, four months is an excruciatingly long wait...

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          • #35
            https://www.nytimes.com/2021/06/04/w...e-mystery.html

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